Mission Statement

The purpose of this blog is to improve the quality of life of cancer survivors. This blog hopes to accomplish this goal by publicizing new research on quality of life for cancer survivors and identify programs and strategies that may help cancer survivors accomplish their goals.

Wednesday, April 27, 2011

Johns Hopkins on colorectal cancer

Working my way down their list, and the Johns Hopkins colorectal cancer website is obviously much superior and still updated to their bowel cancer one. They've got all the standard things, like info about colorectal cancer, the procedures used for screening, and descriptions of treatments.

Now, here is something new and awesome: The Buddy Network.

"The coordinator of the buddy network matches up newly diagnosed patients with survivor volunteers who have had the same disease stage and similiar treatment and share similar demographic factors.  These survivor volunteers provide meaningful one-on-one support and ensure confidential "counseling" to men and women in need of emotional and mental support.
The coordinator, Eden Stotsky, can be reached at 410-502-3098."
Nutrition, exercise, etc after the jump.

They have their own page on nutrition for colorectal cancer. Aside from the normal recommendations, the things specific to colorectal cancer are:
  • eat slowly and have meals at room temperature or a little colder to alleviate nausea
  • patients should not lie down for 2 hours after a meal
  • if possible, patients should not eat in a room with cooking smells, and should have someone else prepare the meals
  • contrary to most basic nutrition recommendations, colorectal cancer survivors should NOT eat much fiber NOR raw fruits and vegetables
They also have a bit at the end that says " All of the nutritional recommendations for patients who have completed colorectal cancer treatment are the opposite of what is recommended for patients during treatment.

Their exercise page is pretty lackluster, only summarizing a report that 30 minutes/day of walking can reduce the risk of recurrence by 50%.  They also have a page that lists some good mind-body therapies, but doesn't link out to anything and doesn't give enough detail for you to do more than just put the terms into a search engine.

And lastly, they do have their clinical trials listed right there on their site. It also gives the phone # of the clinical trials coordinator: (410) 614-3136.

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